Tuesday, 25 July 2017

Broken

Not me , my blog.
Though I am slightly cracked and very rusty.
I'm slow but I go.

Like the Tin Man.
Only he wanted a heart didn't he and tin doesn't rust.

I need oil and new joints. I digress, as much as my joints creak and ache, still I run.



My HTML is rusty too.
Did anyone else have the photobucket 500 error ?
I inadvertently had mine hosted by two others on their photobucket sites .
A change in policy and wham - ugly error messages.

No way am I paying $400 + to host a few blog images and labels.

I deleted what I didn't need or changed the photobucket images to my own url.
Google - I love you.
You have my heart always.

I earned my cape and now I off again for Cancer Council NSW in less than 3 weeks.

My sixth City 2 Surf and sixth year as a Gold Charity runner.
I'm slow but I go.
Why ?

Cancer Council NSW  https://city2surf2017.everydayhero.com/au/trish-taylor


No, I am feeling more than broken. In July my friend was diagnosed with Metastatic breast cancer. She's a mother of 2 children 6 & 9 , photographer, and wife. It is at present incurable or terminal for want of a word we all hate to hear.

She has hopes but we all have to die at some time , some sooner and this is not something she plans to dwell on.

Did you know that some Cancer patients in Australia can be forced to pay $10,000 month for life saving drugs not listed on PBS. 

She was recommended a new targeted drug that she can get on compassionate grounds, direct from the pharmaceutical company that makes it (as it is not a PBS listed drug).

Voice over inspiration #Robynmoore 's lovely words July 25 2015:
difference between optimist and pessimist - both walk past stable full of piles of manure ... pessimist says oh yuck that smells : optimist dives in and says there has to be a pony in there somewhere.

There have been so many ponies in my cancer journeys and I wish I had a pony for the City to Surf in 3 weeks .

Every donation counts $5 is perfect and tax deductible.
I remain optimistic I'll smash the finish line .
I'm also a Cancer Council advocate so I am very aware of where their fundraising $ go.





Friday, 14 July 2017

Cancer Diaries , the Mirror and the Cape.


It's been a long time between posts. Life is very busy.

When I look in the mirror I sometimes don't recognise the face staring back at me .
Looking - my life , my eyes wide open , I see how incredibly wonderful it is. I have very high anxiety due to cancers but I manage.

Yes , I get very scared at times but I have learned how to worry less. I pray, I love, I laugh and when the scary creeps in ...

Breath by breath, day at a time. Till my next followup appointment in 7 days.

I've been doing an immense amount of reading about building yourself up and moving forward , not dwelling on the negative; about taking chances and using my cancer diagnosis to build a better life for myself and help other people.



I still struggle with my self-image and looking in mirror definitely brings me down. Not to mention bed hair or hat hair.

“Mirror mirror on the wall. I'll always get up after I fall and whether I run, walk or crawl, I'll set my goals and achieve them all."
Unknown



Yes, I signed up for two fundraising events - 

Cancer Council NSW  https://city2surf2017.everydayhero.com/au/trish-taylor

Children's Tumour Fdn  https://nfmegaheromarch.everydayhero.com/au/trish


I always feel extremely humbled by the the generosity of not only my family, friends and blogging colleagues but complete strangers who are so willing to give in my name for the research into Cancer and NF.

I am participating in Mega Hero March to raise $$$ to continue to research 'cures' and support those afflicted by NF. Especially for our son Sam.

NO really it's all about the CAPE !

Neurofibromatosis can be a devastating condition. It has no cure. I have NF, as does my son. We are not the only ones in our extended family with this condition.

NF is a genetic condition which causes tumours to form on the nerves anywhere in the body at anytime.

Living with a very visible difference can be challenge. You can’t always hide it. Among other things learning issues, disfiguring tumours and extreme nerve pain can also be problematic for those with the condition.

Because NF causes benign tumours to grow anywhere in the body -sometimes they turn malignant and I had a rare malignant (cancer) sarcoma in 2014 and a few benign tumours removed.

On the whole my NF is quite mild in comparison (others in my family have been much more affected) except for the very rare malignant tumour.The Children's Tumour Foundation helps all of us lead better lives.

This is in 2 weeks , the City to surf for the Cancer Council is in 4 weeks. So more on that later.

Now my daily step goal is 12,000 steps !

Please help me help them by giving whatever you can -click on the link before - then use the 'Give Now' button.
$5 or $10 it all adds up - don't be shy every $ counts. 

Friday, 2 June 2017

Taking stock : Outward Bound

It's been a while and I'm today I'm taking stock ...

Making : Soup - Pumpkin is my favourite.
Cooking : just DIVINE Banana and Walnut Bread
Drinking : Copious cups of tea because I'm going wine free Mon to Friday 5pm wine o clock.
Reading: Jackie French's To Love a Sunburnt Country 
Wanting: Rissotto for dinner - but it's not happening.
Looking: Endlessly for missing school uniform items and soccer gear.Every. Damn.Day.
Playing: with Fidget spinners
Wasting: Time
Sewing: Up Holes in the sleeping bag
Wishing: Someone would come and do my sewing
Enjoying: Winter sunshine in Cloud 9 hanging chair
Waiting: For Outward Bound Women of Courage 
Liking: Starting potential new friendships with other families who have the same genetic disorder as I do - Family support group
Wondering: Why I didn't do it earlier
Loving: Balance and bodyawareness exercises.
Hoping: It's not too cold in Canberra next week for the Outward Bound 'Women of Courage' 6 day trek - Namagbi National Park near Canberra ..bbrrrrr
Marvelling: That almost 5yrs has passed since my Breast Cancer diagnosis.
Needing: A holiday ... we booked a Cruise for November.
Listening: To Outlander series on audible audio books.
Wearing: gym gear with hiking boots because it reminds me to keep moving.
Following: 6 Exercises everyone must do
Noticing: More grey hairs
Knowing: if I want I have to go faster - I must 25 ways to run faster - 
Thinking: I might go for another walk.
Bookmarking: 24 diagrams that make healthy eating easy http://ow.ly/NWWY8
Opening: Wine in 3 hrs
Feeling: Pain from group classes at the gym.

Taking Stock is Thanks to Pip at Meet Me at Mikes.